Breast Cancer Collaborative Registry
If you or someone you know is interested in participating in the Breast Cancer Collaborative Registry, email us or call 605-322-3259.
Contribute to medical research and the future of breast cancer treatment when you participate in the Breast Cancer Collaborative Registry (BCCR). You’re eligible to participate if you have:
When you join the registry, you’ll answer questions about your medical history, diet, lifestyle habits, environmental exposures and family history, while your physician provides the BCCR with information about your treatment.
Advancing Breast Cancer Care through Research
The Breast Cancer Collaborative Registry is a partnership of breast cancer researchers from Avera Research Institute and the University of Nebraska Medical Center/Fred & Pamela Buffett Cancer Center, a National Cancer Institute-designated cancer center.
All information gathered during the study is stored on a secure, online registry and used to help our research team:
- Study the factors that influence the risk of developing breast cancer as well as the prognosis and quality of life of breast cancer patients
- Identify individuals who might benefit from screening measures to detect breast cancer at an earlier and potentially more treatable stage
All blood and tissue samples are securely stored in our tissue biospecimen bank for potential use in future research studies.
Individuals who are at least 19 years old and are willing to provide informed consent may be eligible to participate in this breast cancer registry if they meet the following criteria:
- Individuals (male and female) who have a personal diagnosis or history of breast cancer; or
- Individuals who have characteristics of hereditary breast cancer or who have an increased risk of breast cancer; or
- Individuals who have an immediate family member who has been diagnosed with breast cancer
If you’re interested and qualify for this research study, you’ll be asked to sign an informed consent form. Learn more about informed consent and feel free to discuss this study with your family and friends before participating.
Confidentiality, Privacy & Security
We’re committed to protecting your confidentiality and privacy. Only patients – using their own user ID and password – and the Fred & Pamela Buffett Cancer Center research team have access to the medical data. Each participant's personal identification is also replaced with a medical code number for anonymity.
Any security issues are addressed using recommendations of the computer-based Patient Record Institute and the electronic information security standards regarding the collection, use and retention of data mandated by the Federal Health Insurance Portability and Accountability Act (HIPAA).